cbd oil epilepsy child

But doctors say they cannot prescribe it due to the guidelines.

Alfie Dingley, who has a severe and rare form of epilepsy, helped bring about the legalisation of medical cannabis.

The parents of three-year-old Charlie Hughes, from Norwich, are mounting the first legal challenge to the guidelines.

'His quality of life has really improved'

A spokesman said Epidoylex could be prescribed on the NHS because there was clear evidence of its "safety, clinical and cost-effectiveness".

"We are so lucky, but we feel so bad for the other families in this terrible situation," she says.

What is medical cannabis?

His father Matt Hughes said: "Last week he painted his first picture, he is doing so well, his quality of life has really improved. It is so unfair that the burden is on us to fund it."

"It is barbaric what they have had to go through to keep their families safe."

A prescription for medicinal cannabis would only be given when all other treatment options have been tried or are considered unsuitable, and would only be given if the doctor considers it to be in your best interests.

Guidance for other conditions is being drawn up the Royal College of Physicians with the Royal College of Radiologists (RCR) and the Faculty of Pain Medicine of the Royal College of Anaesthetists.

“Clinicians should not feel under pressure to prescribe cannabis-based medicinal products until they have undergone proper clinical trials,” says the BPNA.

Although the label Lennox-Gastaut is often broadly attached to severe epilepsies with compatible seizure types and intellectual disabilities, it is important that there is a clear syndromic diagnosis.

Getting a prescription for medicinal cannabis

CBD is not psychoactive and it is thought to be responsible for many of the medical benefits associated with cannabis.

Concerns have also been raised about the effect of THC on the developing brain in children and young people. Evidence suggests that chronic exposure to THC can affect brain development, structure and mental health.

THC is the psychoactive compound in cannabis. It is responsible for the “high” people feel. The legal limit of THC content in a product, as stipulated by the Home Office, is 0.2%.

Guidance around prescribing cannabis-based products

On 1 November 2018, the Government's landmark decision to reschedule some cannabis based products for medicinal use, came into force. The change in law means that specialist doctors in the UK can now prescribe medicinal cannabis to people with a limited number of conditions, including epilepsy. Here we explain what the change in law means for people with epilepsy.

People always have the option of seeking a second opinion.